Welcome to The Sleep Apnoea Trust Association

Working to improve the lives of sleep apnoea patients,their partners and their families. Managed by volunteers, SATA is regarded as the leading UK charity working in the field of Sleep Apnoea

Complimentary Medical Alert card and purchase of a Medical Equipment Baggage Tag are now additional benefits if you join the Trust


Privacy Notice, Cookie Policy and Website Terms of Use


Sleep Apnoea Trust Association Privacy Notice

CONTENTS OF PRIVACY NOTICE

  1. Introduction
  2. What is The Sleep Apnoea Trust?
  3. Explaining the legal bases we rely on
  4. When do we collect your personal data?
  5. What sort of personal data do we collect?
  6. How and why do we use your personal data?
  7. How we protect your personal data
  8. How long will we keep your personal data?
  9. Who do we share your personal data with?
  10. What are your rights over your personal data?
  11. Contacting the Regulator

1.Introduction
This Privacy Notice explains in detail the types of personal data we may collect about you when you interact with us. It also explains how we’ll store and handle that data, and keep it safe.
We know that there’s a lot of information here, but we want you to be fully informed about your rights, and how the Sleep Apnoea Trust uses your data. 
We hope the following will answer any questions you have but if not, please do get in touch with us.
It’s likely that we’ll need to update this Privacy Notice from time to time. We’ll notify you of any significant changes, but you’re welcome to come back and check it whenever you wish.

2.What is The Sleep Apnoea Trust?
The Sleep Apnoea Trust Association, which we’ll refer to as ‘the Trust’ in this document, is a UK charity registered  on 29th June 1996 to promote the understanding and treatment of sleep apnoea in the UK.

3.Explaining the legal bases we rely on
The law on data protection sets out a number of different reasons for which a company may collect and process your personal data, including:

a) Consent
The terms and conditions of membership, as explained in the joining email and welcome letter, clearly state that our primary communication with you will be by email. For those without email or not wishing to use email communication, you can opt in to use post as the primary communication. Members can choose to have both email and post if they wish.
The regular newsletter, Sleep Matters, has a separate choice, so a member using email can request Sleep Matters by post as well as or instead of email.

b) Contractual obligations
In one circumstance, we need your personal data to comply with our contractual obligations.
If you have registered with us for Gift Aid on membership contributions and donations, we are obliged by Her Majesty’s Revenue and Customs (HMRC) to provide your title, first name, last name, first line of your address, postcode, the amount you paid us and when, for each fiscal year in which we have made one or more claims. There are no other circumstances when we would provide personal data.

c) Legal compliance
If the law requires us to, we may need to collect and process your data, such as details of people involved in fraud or other criminal activity affecting the Trust.

d) Legitimate interest
In specific situations, we require your data to pursue our legitimate interests in a way which might reasonably be expected as part of running our charity and which does not materially impact your rights, freedom or interests.
For example, we will use your personal data when you book a place at the SATAday conference or any other conference or meeting we may organise.
Occasionally, we will email you an invitation to participate in some research and development being carried out by a third party. It is your decision to respond to  the invitation and become involved and you decide how much of your personal detail you provide. NB We do not share any personal information whatsoever with that third party.

4. When do we collect your personal data?
When you join the Sleep Apnoea Trust Association.

5. What sort of personal data do we collect?
         a) From your membership application and medical alert card application: title, name, address, email, telephone number(s), sleep apnoea type, date of joining,
         how long on CPAP, Sleep Clinic attended, Gift Aid decision.

b) Also we collect notes of contacts with you, such as amendment to email address, registering for the SATAday conference and other details you wish to share with us.

c) Payment detail is kept for the 12 months following payment and deleted after the audited accounts of the fiscal year in which you paid are accepted at the Annual General Meeting in October/November, then deleted.

d) We do not keep payment card details when you pay us by phone.

6. How and why we use your personal data.
We use you data to manage your membership and to provide your membership benefits, e.g. Medical Alert card.Please be advised that if you choose not to share your personal data with us, or refuse certain contact permissions, we will not be able to continue to manage your membership, in which case your membership would end.

7. How we protect your personal data
We know how much data security matters to all our members. With this in mind we will treat your data with the utmost care and take all appropriate steps to protect it.

8. How long will we keep your personal data?
        a) As long as you are a member of the Trust.

b) If your membership ends, we will keep records for 12 months following the cancellation for fiscal year auditing purposes and until the accounts for that fiscal year have been accepted by the AGM.

c) At the end of that retention period, your data will either be deleted completely or anonymised, for example by aggregation with other data so that it can be used in a non-identifiable way for statistical analysis.

d) In the case of Gift Aid, HMRC requires us to keep records for 6 years after a claim is made, irrespective of membership status. The information we collect is Title, First Name, Last Name, First Line of Address, Postcode, Amount Paid, Date of Payment. Six years after the claim, the data will be deleted.

9. Who do we share your personal data with?
We do not share your personal information with any third party other than HMRC for Gift Aid Claim purposes.

10. What are your rights over your personal data?

a) You have the right to request:
I. Access to the personal data we hold about you, free of charge in most cases.

II. The correction of your personal data when incorrect, out of date or incomplete.

III. For example, when you withdraw consent, or object and we have no legitimate overriding interest, or once the purpose for which we hold the data has come to an end (such as the end of membership).

IV. You have the right to request a copy of any information about you that the Trust holds at any time, and also to have that information corrected if it is inaccurate. To ask for your information, please contact Data Protection Officer, Sleep Apnoea Trust, PO Box 60, Chinnor, Oxon, OX39 4XE or email info@sleep-apnoea-trust.org.

V. To ask for your information to be amended, please contact the Managing Secretary by phone 0800 025 3500 option 3, email info@sleep-apnoea-trust.org or write to Sleep Apnoea Trust, PO Box 60, Chinnor, Oxon, OX39 4XE .

VI. If we choose not to action your request we will explain to you the reasons for our refusal.

b) Your right to withdraw consent
When you join SATA, you have given us your consent to use your personal data, but you have the right to change your mind at any time and withdraw that
consent. However if you do so your membership will end (see Section 6b above).

c) Where we rely on our legitimate interest
In cases where we are processing your personal data on the basis of our legitimate interest, you can ask us to stop for reasons connected to your individual situation. We will then do so but your membership will end.

d) Checking your identity
To protect the confidentiality of your information, we will ask you to verify your identity before proceeding with any request you make under this Privacy Notice. If you have authorised a third party to submit a request on your behalf, we will ask them to prove they have your permission to act.

11. Contacting the Regulator
If you feel that your data has not been handled correctly, or you are unhappy with our response to any requests you have made to us regarding the use of your personal data, you have the right to lodge a complaint with the Information Commissioner’s Office. You can contact them by calling 0303 123 1113.
Or go online to www.ico.org.uk/concerns (opens in a new window; please note we can’t be responsible for the content of external websites)
If you have any questions that haven’t been covered, please contact our Data Protection Officer who will be pleased to help you:

  • Email us at: info@sleep-apnoea-trust.org
  • Or write to us at Data Protection Officer, Sleep Apnoea Trust, PO Box 60, Chinnor, Oxon, OX39 4XE.

This notice was updated on 21/05/2018

Cookie Policy

A cookie is a small text file containing information which a website asks your computer to store for next time you visit. Websites use cookies for lots of different reasons, such as storing preferences, logging you in or keeping track of things in your shopping basket. This site only uses cookies to see how the site is being used so we can make improvements and no personal information is stored. By continuing to use the site you have given your implied consent to this. If you disagree you can disable or remove cookies using your Browser settings.

Terms of Use

The information contained in this website is for general information purposes only.

The information is provided by The Sleep Apnoea Trust and whilst we endeavour to keep the information up-to-date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the website or the information, products, services, or related graphics contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk.

In no event will we be liable for any loss or damage including without limitation, indirect or consequential loss or damage, or any loss or damage whatsoever arising from loss of data or profits arising out of, or in connection with, the use of this website.

The materials on this website are intended to give an overview of the condition of sleep apnoea. They are in no way intended to replace the professional medical care, advice, diagnosis or treatment of a doctor. The website does not have answers to all problems. Answers to specific problems may not apply to everyone. If you are worried about any aspect of your health you should consult a doctor in person

Through this website you are able to link to other websites which are not under the control of The Sleep Apnoea Trust. We have no control over the nature, content and availability of those sites. The inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them.

Every effort is made to keep the website up and running smoothly. However, The Sleep Apnoea Trust takes no responsibility for, and will not be liable for, the website being temporarily unavailable due to technical issues beyond our control.

If you do not agree with these terms of use you should not use the site.

Web Site content is Copyright 2018 The Sleep Apnoea Trust. Please contact us if you want to publish or use this information elsewhere.

SATA is a UK Registered Charity (number 1056963) We use cookies to help improve our site (see our cookie policy)